To All The 2 – Debate – Fibromyalgia and chronic fatigueVer vídeo

• To All The 2 – Debate – Fibromyalgia and chronic fatigue

ME / CFS as immune disease

27Domingoene 2013

Posted by Robert Cabré in Artículos, Commentaries, EM / SFC, SSC

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Quality of Life, EM / SFC, emerging diseases, invisible illness, Central sensitization syndrome

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome ME / CFS, as well as the rest of central sensitization diseases SSC, disorder is still controversial and can be diagnosed only after ruling out other causes, in this case the predominant fatigue.

This process generates a chronic social disorder due to the inability to maintain the professional tasks, social and family, especially in the stages three and four. Reviewing the extensive literature available on recent multidisciplinary its etiology and treatment, shows that there are two main opposing positions, one that includes, for their comments psychosocial, as a psychosomatic illness and another that relies, by analytical observations, in the field of immunology.

The current etiologic hypotheses are based on factors predisposing, precipitating and perpetuating factors, but the pathophysiology remains unclear although the viral origin, that the retrovirus XMRV esperanzaba, is now largely discarded.

The assessment of the theories of fouling and environmental pollution and resource-therapeutic elimination diet and, are not even considered by conventional medicine, weigh ser, a potential cause and offers improvements in quality of life. This fact is not valued, the difficulty, academic skepticism and complexity in finding funding for the study of these diseases, despite individual and social costs representing.

CFS patients require a multidisciplinary approach for many different problems affecting them, fact that is not covered in addressing these diseases SSC. This approach by management and multidisciplinary care, require coordination between different specialists, focusing on the field of immunology and toxicology mostly, instead of rheumatologists, internists and psychiatrists, who have demonstrated their inability to meet and join with the problem and the difficulty in coping.

Nowadays, is no effective curative therapy for patients with chronic fatigue syndrome, The same occurs with other diseases SSC. Cognitive Behavioral Therapy (TCC) and graded exercise therapy (GET) currently have a beneficial effect doubtful, not accepted by patients and highly discussed, despite attempts to justify scientifically by those who practice professionally.

The goal of treatment is now more focused on improving the clinical, the attempt to maintain the functional capacity and quality of life by addressing symptomatic medications. Such treatments are maintained despite the failure and neglect of children. Its cause is not involving specific peculiarity and individuality SSC diseases. This hampers the development of palliative individualized programs, more focused and to the extent the intent to provide each patient with a high perception of improvement and physical and psychosocial adaptation as chronic, while solutions are not based.

Those affected feel orphaned health protection, in many ways. Perceive existing professional chaos to a disease centered on the edge between medicine and psychiatry. From perceive, as more professional attitude politically obscure interests and stakeholders profitably, that intentions and interests to consider and treat this disease as such, a chronic and actual biologically, and highly debilitating. From the psychiatric manifestations, to be recognized as manifestations secondary to a chronic primary, usually as a result of treatment of patients, which in many cases, is vexatious and marginal as widely manifested most affected.

“
There is an international conspiracy of sick, there is only a discredit to the professionals. "

Proof, is that it is the only disease that manifests socially with international conflict and associative, confronting health professionals among them and among the affected. Such conflict of relationship is due to stigmatization and mistreatment by patients, mostly, by health and social institutions. Acts as repeatedly reported to the competent authorities and that does not lend the slightest attention.

Providing funding for research is not only necessary, is imperative, to identify and correctly diagnose correctly diagnose the causes and those affected, regulating the approach and management of patients by creating unified adequate records and the healthcare system, instead of the current attitude of health policy that not only denies the existence of such diseases, if not diluted in the primary care centers, being treated by a professional, mostly, malformed in these conditions and that pressure overload them and claim the profitability of healthcare institutions to privatize.

Those affected by SSC, such as Fibromyalgia and ME / CFS, despite being listed by the WHO as real diseases with specific sections, are not health systems. This creates a lack of legal protection to not be seen as chronic disabling diseases and unfairness that surpasses the basic rights of access to health, recognized by the constitution.

The most curious of these facts and mystifying is that those affected, despite the official views provided by the center for disease control CDC Atlanta, which historically has advocated psychosomatic theory, from 1990 found in the annals of medicine, publications that guide the ME / CFS to the field of immune deficiencies, so i attached as references attached. Studies that have been totally ignored, even when the focal points of these diseases were located on level hospitals 3, with all the technology for research at your fingertips.

ESTUDI EPIFFAC

We stayed at the College of Physicians of Barcelona on 23 January to attend the ceremony of the presentation of this study in which, Our association collaborated with members who participated in it.
Spanish is the first epidemiological study to analyze comprehensively the impact of family, labor, social and economic development of our country along FM,besides being one of the first examples in Europe.
The Foundation FF goal was to learn about the impact that produced the sick and their families and this prompted this study where researchers collaborated, Centres sanitaris, technical centers across the state and institutions such as Fundación Pedro Tarres, Salut Mar Parc in Barcelona, H. Clinic of Barcelona, HHGregorio Maranon de Madrid, The Provincial Council of Barcelona and the Fundació ONCE.
In the Presentació taula estaven: Dr. Carbonell Medic from the Foundation PresidenDr Dr. Michael Vilardell president of the College of Physicians (Science Committee will form part)FF president Emilia Altarriba, Pull. Rosa Valles on behalf of the Government and Dr.. Antonio Collado, Scientific Committee and one of the researchers who told us how the study was done and the results.
El Dr. Col talked of the Scientific Study of FM and repercussions within the family, social, Economic and labor through the foundation and the top of it, el Dr. Carbonell.Dr
The sample was made in different municipalities:
1- Of 20.000 people ( 11 Centres )
2- Of 20.001 a 100.000 people ( 11 Centres )
3- Of MES 100.000 people. ( 13 Centres )
In health centers and in each Autonomous Community.
Patients
530 but bore the study, 375.Mixtures of fer 6 ask pads, demography, llar, family, work…
225 patients
96% gifts, age 51'9 years, 75% Casades, educatiu nivell elemental, professional services, industry…, symptoms from the 37 6'6 years of age with a delay in detecting the disease, time Evolució 10 years 67% Muscular-esquelètic of trastorns, 35% psicopatològics, digestius… and a very poor health.
Family situation and economic
59% difficulty with partner, 44% need help house, 27% someone has changed jobs to help the family member, with economic losses. An average reduction of 504 € and 230 € per month with extras.
Labor Entorn
93% have been working an average of 23 years, 70% many difficulties, 50% amb labor absentisme,63% notify the malaltia, 30'4% Make adjustments to work, 19% canvien d'company. Two stubborn is the circuit will work fora quedant.
Entorn Sanitari
38% Mance health recolzament, and professionals note that comes out is 4'9.
Social Help
27'5% Of disability tenen grau algú ( Pel demanad Sols 35% patients)
23% Invalidesa permanent, 50% recognition by the State Administration, 50% Judicial per Resolució.
Social Organization
26% i estan associades 20% trade unions
After the termination of this part, was a tribute to Dr.. Broggi, with a speech by the Emilia emotional Guilds, a video that will send Mr. Mayor Zaragoza elogiant the trajectory of Dr. Broggi over its 104 years and a family friend, birdsong played for his memory. Were two children who received gifts from a Foundation. Dr. Moisés Broggi was Honorary Member of the Foundation.
Maite Vivancos